Makes you think

Miles was here working on a book report that had to be about a nonfiction book. His book had several articles. One he shared with me was about reading the Declaration of Independence in New York. Everybody wanted more action so they toppled a statue of the king and cut off his head. Sound familiar? Guess many nations are following our history.

fun viewing

What a fun evening watching the Beatles tribute. Fifty years ago I was 17 and one of the teenage girls listening to their music. No, I was not a screaming one. It was the music of the early baby boomers. Now it is hard to imagine that they created such a fuss with their hair cuts. The times were changing.

Bittersweet

Last Sunday was caregiver Yukie last day. After 3 years she will be missed. During the last year and a half she had cut back her hours because she had gone back to school. Still she had continued to work one day a week. Now she starts nursing school Monday. It is one of those times when I know she made the right decision but I don't like it. She did promise to keep in touch and maybe come babysit during her breaks. She will be missed by the whole family.

loss

Monthly support group has been a regular part of my life since diagnosis. Some months the topic was very useful and other times I was able to provide help to others. Several of us with slow progression have learned to expect losses. However the past three months have been tough. With the loss of seven regular members we all have to regroup. Some losses were not surprising but others were. Each time we spend a few moments taking about our memories and acknowledge the individual. My thoughts go out to the office staff. Participants in support group are just a very small percentage of the people living with ALS. They have to deal with loss regularly. Each of them are always upbeat in spite of regular loss. Amazing people.