Lobby Congress Please!

I am asking everyone to contact your members of Congress. There is a move to discontinue medicare coverage of speech generating devices (SGD) such as the one I use.  In addition there is a move to discontinue coverage of any device that can connect to the internet. I think you all know how important a SGD with internet is to me.  People living with ALS would  not be able to connect as I am now.

Please tell your representatives to sign the letter supporting SGD  before September 5th.

 

Here is a link to the ALS website and links to sample letters.

http://capwiz.com/alsa/issues/alert/?alertid=63296496&MC_plugin=2821

 

Thanks much!

Ice Bucket Challenge

Everyone is doing the ice  bucket challenge!!! Todd set up a system that doused  four people at once AND I pulled the rope with my chair.  We doused 12 people on Sunday.

Dave would have been proud of the engineering in the simple design.

The amount of money raised is mind  boggeling. Maybe now something will be found to treat or maybe even stop ALS. Of course everybody realizes this is a one time windfall but the awareness of ALS will not go away. Even if only half the people know what the disease does that is many more than before.  So a great big thank you for everyone that took the challenge and also donated.  I hope some marked it for my walk team Gang Greene.

Computers

Yes, Barbara you are right. It has a long time since I have posted. Thanks for noticing. There are several reasons. One is that I had problems with eyegaze on dynavox. Second is the opportunity to try a different device called Tobii. Third is my decrease in leg strength.

Here is the situation. Once again dynavox would not calabrate. Tried several things before calling technical support. Solution was once again to send it in. Oh by the way your warenty is up August 28. I really think the eyegaze has worked less than half the time I have had it. Thinking that learning Tobii quick and easy would solve that problem I choose not to send it in. Looks like I will have to get a loaner any way.

Tobii is taking time to learn and there are some things that are better on each system. I am using Tobii now and you have probably noticed spelling and grammer errors. Although much easier to set up the word prediction is not as good. I have noticed several places where I must have misspelld something when I first used it. A bad speller like me is never sure the word is correct. Now add in the difficulty editing and it is a mess.